Saturday, April 9, 2011

First...I guess Ryder's surgery can happen anytime with about only a weeks notice...so we'll see when that is! I'm so nervous waiting for the letter w surgery date.
Next, I was so blessed to meet this wonderful family in the waiting room before Ryder's appointment with his Ortho surgeon. The kid was about 7 he also had a sister about 3 years younger (like Ruby and Ryder). This boy was SO much like Ryder...smart as can be! he was so sweet! He looked at my mom and then Ryder and said, "does he talk?" my mom said "Yes he does." then told Ryder to say hi...it took a lot to get ryder to say hi to this kid (ryder is so shy!) finally he said hi....
anyways it was so cute...but the best was the mom and I exchanged info...and it ends up her son just had this surgery this winter that Ryder is having. She sent me a message and I'm going to share it...
I am so grateful God blesses me with such great people at perfect times. When we found out Ryder had CP, a woman I talked to that was a parent of special needs kids told me this...and I will ALWAYS remember. "Heavenly Father will always provide a way to get through our trials in life. Heavenly Father will always provide a way to get through what we face with raising these special Spirit children." Can I just say she wasn't kidding. We always are blessed with such wonderful people in our life, and the blessings we see are beautiful. Anyways here is some of her email....(oh and she talks about HAB, thats the service through the state that someone comes in and helps the child meet goals, and helps teach self help skills..its for kids that are severe....but sadly Ryder was DENIED completely because of s state workers stupid mistakes..and now we are fighting to get it for Ryder....esp after this email I got from this great new friend.)

"I am pretty sure Ryder is having the same procedure that our son had, our son also had his adductor tendon's released, because they were so tight and the botox wasn't helping as much, so Dr. Segal decided to cut the adductors. It is a very intense surgery and recovery, but it was well worth it for our son. I would also talk to your DDD caseworker to asked to have more hours put in for HAB and possible attendant care because after the surgery most of what I had to do with our son took two people. The recovery was much more extensive that I expected and I was so thankful to have a provider there to help me during the day!! Especially having to care for my daughter as well...

I was also very nervous about the procedure, but it really helped our son and all of what he had to endure was very tough for him and for the family, but I do think it was worth it!

Please feel free to ask me any questions.

The Procedure is intense and it will be alot on you as a parent, but you were given Ryder because you are an incredible mother! Always remember not eveyone has the ability to do what you do everyday!! You are a very special MOM and you need to remember that!!"

2 comments:

Shelly said...

Thats the truth Kira you are an amazing mother!! Heavenly Father sure knows what he is doing and is very mindful of each and everyone of us, thank you for sharing this((HUGS))

Marilee said...

She is so right!!! Love and prayers!