Wednesday, August 13, 2008

Ryder is well. He's just really busy with therapy! We are always working with him...it's fun, but sometimes I feel bad when he gets so tired from constantly being worked with. Ryder is showing a couple signs of cerebral palsy...at this point the seriousness is unknown...but he is almost 8 months old and not really rolling over yet. He has a few times, but it must've been on accident cause he doenst do it anymore. We are working on that though :) He still is floppy with his neck, we are trying to strengthen his "inner core" muscles...so his neck is stronger. His feet also are being naughty, they keep stiffening and turning out a little...so we got him converse "chucks" to hold his ankles like a brace would. He also still uses hand braces for his CP thumbs. We are now trying to get him on "long-term" care...so he can qualify for pretty much everything these special needs babies do.

Today occupational therapy came and saw him...she realized his suck is still very weak, for example we still gotta hold the binkie in his mouth, cuz his suck is so weak....he also is still on newborn/3month nipples....at almost 8 months! ! but thats ok, we are working on that to :) But apparently the weak suck is all part of CP/ nuero baby. As expected.....but with all this we really don't mind :) Also we are pretty sure he'll have some serious speech problems, that a speech therapist might start working with him. He's a beautiful special gift from God, and we love spending all the time we can doing therapy, and playing!

Ryder now laughs out loud...its so cute! He's such a good little boy! we love him so much! We thank Heavenly Father everyday for being blessed with such a special spirit baby. We often wonder what we did to deserve such a special little one in our home.....the spirit he has with him is so strong and sweet...these special needs children are so precious in many ways. My heart goes out to all of them! I love them all! what fighters.

4 comments:

3in3mom said...

Kira,

You have such a great perspective on life's challenges. I am so grateful Ryder is getting such great care. I hope he continues to progress and grow well for you!

love, Chalice

Shiloh McKinnon said...

I am right with you on that one. I love having my own "special" kid from Heavenly Father. Isnt it amazing the sweet spirit these kids have?! I just remembered that Kadence never moved up from the slowest feeding nipple and still to this day she really doesnt have a strong suck. I just thought that was a Kadence thing but I guess it is a preemie/CP thing. I still cant wait to meet this little guy. We should get together soon! Call me and we will set something up.

The Gundies said...

These doctor's tell you all the things that are wrong with your kids...like theirs are so perfect. I love my Ryder! One of my best friends growing up had CB and I wouldn't have changed him for the world. The diagnosis gives challenges but does not make regular life impossible! I can't wait to see you guys this week! I hope we have a enough money to make it after we stop in Mesquite?

Coree Adams said...

K...I LOVE HIM!! He makes the cutest faces. He's a trooper and so are you. Hang in there my dear! Sometimes the road is hard, but they make it so worth it! I love your outlook on having a child with special needs. I think more people in this world need that outlook. LOVE YA!