Thursday, May 7, 2009

Update on Ryder boy! He's still the cutest kiddo ever!!! We've been very busy still with doctors and specialists and therapies!!! And I'm still trying to catch up from the hospital stay...he still has a cough from that to!!

The new updates....Ryder saw an amazing Doctor...Dr. Kwaznica. She said that Ryder is def moderate more so severe CP. But the crazy thing is that he does things that he totally shouldnt considering the severity of the CP. Like opening his right hand up....waving.....and things like that. He actually said "good boy" to her....she laughed and agreed that he indeed was a good boy! and oh he is! For the first time he didnt cry with the dr, he laughed with her....that was good to see. I thought he'd be traumatized for life after the hospital.

After all our doctor appointments this is what kinds of cerebral palsy he has.....fyi sometimes people only have one type of cp. The most common is Diplegia...which ryder has, as well as several others.

Once again they believe Ryder is mentally there....which I'm pretty sure of....he told my mom the other day "i uv u" pretty good for a 16 monther i think.

anyways these are the types that he has...all combined with the descriptions....so they all work against eachother, which is why we are pretty sure he'll be in a wheelchair his whole life....but thats ok, he can do many things in it!!!! he thought the wheelchairs at the dr yesterday were pretty cool! it was cute. He gets his first wheelchair next week! yay!!! the pics i posted a few months ago. .... ok no here are his cp types.......

Diplegia: is the term used in the types of cerebral palsy that affect the lower extremities. These patients may be able to control arm and trunk functions but have the most difficulty with leg movement.
(ryder has this but another that affects his arms and trunk as well)

Quadriplegia:
is used to define the types of cerebral palsy that affect all four extremities and impair trunk and neck muscle movements. This is often the most severe form of cerebral palsy and is therefore usually the most debilitating.
( this is the saddest one he has, it'll be rough for him to deal with.)

Hemiplegia: involves the types of cerebral palsy that affect one side of the body. Usually one arm and one leg are impaired in hemiplegia and is usually the result of a cerebrovascular accident (stroke) that occurs while the child is a fetus or during infancy.
(ryder's right side is affected by this, he hardly uses his right side....esp his arm/hand)

Spastic:
Spastic cerebral palsy causes movements to be stiff or difficult to execute. In these types of cerebral palsy the muscles may not be able to relax properly.
(Ryder goes back and forth on this one....one second he is as stiff as a board, then totally limber the next minute, but its annoying for him needless to say!)

So we see that life will def be hard on him, and us. The doctor said that as time moves on it will show more severe symptoms....but its ok.
I'm not going to lie, it is hard to take in. The hardest for me as his mother, is watching him around other children. They are up running around him, and taking toys away, and just being regular kids. Then he's pretty helpless laying in one spot crying when they run away and he can't follow. My sister stephanie's kids are really good at hanging around him, and playing with him...esp Drake! what good cousins Ryder has! all of them are great.
I try not to focus on the sadness in my heart when he's around other kids, but I can't help just for that split second, to feel so sad for him. I just remember it cant change....but all I can do is teach him to be strong...and that he's one cool boy just the way he is!!! I met this woman at the dr yesterday that had a son with physical disabilities. I asked her how do you teach them to ignore peoples many stares?? she said I tell my son just smile and wave, say hi. She said it always works. Smiles almost always work! gotta love smiles.
Well thats my thoughts. wow! a lot! but minds just filled with so much : )

6 comments:

3in3mom said...

I love reading your thoughts and learning more about Ryder's life. You are so right--smiles make a huge difference and it seems Ryder is very good at that!

We love you and pray for you often.

Shiloh McKinnon said...

LOVE the pics. Thank you for this info. I swear you know more than me in this field and I do have some questions for you. I am going to get your # from Kristen and give you a call

Miss Niss said...

he seriously is the cutest boy ever! you guys are great parents and he's so lucky to have you!!

Marilee said...

Your family is great! That little boy is so LOVED!! All parents get that heartachy-sad feeling on behalf of their children and it's okay. You're right...we just have to move on and be positive! I agree with the SMILE, a smile can fix anything. Love you guys!

Nik said...

Wow, Kira! You guys are super strong..Thanks so much for the update..what a cute kid! He sure does have a amazing smile!

Bryon's Family said...

I am at a loss for words today. Ryder is totally my bud and I can't wait to see you guys next month. You won't be able to get rid of me! Hope that doesn't scare you off. I have so many little jokes I could make right now, but because there are people around who just don't understand what a moron I am, I will save them till later. Can't wait to make you laugh!